I have a sharp pain in my right shoulder which is due to the chest infection I have. Yesterday I had lunch with my friend, Tina, and had a phone call from the Dr's surgery. My GP is calling me today as he hasn't sent any information off to the Dr in Taunton about the TOF. He says he wants to talk to me about the consultation. I hope he isn't going to try and talk me out of it. I feel I should have a second opinion concerning the TOF as I am not satisfied with what I have been told by the previous Dr's. They have said it is the stent or pneumonia for the rest of my life. The stent is too painful to keep in and it slips out of place, I have had 2 put in and taken out. If he wants me to cancel the appointment, It isn't going to happen. I need to know that there is nothing can be done or may be there is something. I did find an article on the web which concerns a 27 year old man with the same condition who had a supraclivicular incision. I am going to take the information with me on Monday and id this Dr says I am unable to have the TOF sorted out, I will leave it at that.
I will have to sort out some kind of diet as I am sticking on food constantly and feel I will be asperating again if I am not careful.
I will update when I have more information.
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